Wednesday, February 27, 2008
Posted by Angel Gabi's Mommy at 1:48 PM
Tuesday, February 26, 2008
Posted by Angel Gabi's Mommy at 7:54 PM
Friday, February 22, 2008
So much has happened to us this week I cannot even begin to think on where I should begin!
First I want to update on Ava and Bella...
Ava came off of EMCO on Wednesday. Her oxygen saturation levels have been running a little low, but they are doing well enough that she is surpassing the expectations of what was expected of her. She still has a long road of recovery, but the first 2 majors steps are complete. God is definitely on her side:)
Bella had surgery on Thursday and is recovering very well. Jason and I actually got to see her last night. She looked incredible, as if she had not even had surgery that day. And the most amazing news was delivered after her surgery. Her pulmonary vessels have always been very slow. Matt and Megan were told this would never change, well as we all know she is an exception to the rules. Her vessels are "normal" sized. Can you believe it? It is as if God is showing just how much he can do for us if you just believe. Bella has been through many challenges, but still continues to beat the odds.
I have to be honest though, one of the toughest things Jason and I have done was to actually go into Bella's room in the PICU. She looked just like Gabi did...laying in the same position, iv's in every inch of her little body, medication by her side, the trach, her little tongue was moving like crazy, and most importantly she had little piggies in her hair. I had to keep staring at her hair color to focus on the fact it was not my little girl...all Jason could see was Gabi. Although it brought on tears later in the night, we were very glad we went in and saw Bella. We know that believing in God and what he is capable of doing for us is possible, but when we think of what happened to our baby it has definitely made us wonder. So seeing Bella reassured us that with God, all things are possible!
Now on for our update...
Kinsley is doing well and growing more everyday, so of course I am starting to look like a cow:) I will post picture next week. On Tuesday I will be 7 months...holy moley, we are sooooooo excited!
Jason has had an interesting week to say the least. His company decided to restructure and in turn down size. So after only 3 months in his position was eliminated. Can you say...what next??? With that being said he is currently looking for a new job and we have to find something fast, no income is not a way to live when you had no idea it was coming!
Today we also found out that our health insurance is no long in effective as of March 1. Being 7 months pregnant is not a good thing without health insurance. So anyone out there know of anything in the KC, Topeka, Lawrence, or Indianapolis area for a well experienced sales manager/recruiting/trainer positions? To get out of our lease and move back to KC will cost a lot, but at this point we are looking at all of our options.
I do apologize for venting, I haven't done this in a while, but it seems as if nothing is going our way. Oh, did I mention we got a flat tire on my brand new car on our way back to KC yesterday. And of course it wasn't something that could be fixed, so we had to purchase a new tire on top of everything! When it rains it pours...I wish we could find some kind of shelter for just a bit!
I did want to thank those of you who participated and donated this week for the one week challenge. The week is not over yet, so for those of you who have not had a chance to donate you still have tonight, Saturday, and Sunday. Remember it is for a great cause, these families could really use our help...we depend on you for that help! Thanks again!
And if I could I have one more minor request, please keep us in your prayers as we try to find our way through this n ext challenge we have been given.
Love to all:)
Posted by Angel Gabi's Mommy at 7:39 PM
Sunday, February 17, 2008
Many of you have already donated and we greatly appreciate your support, maybe you could encourage your family and friends???
I would like to challenge you to see how much money we can raise in one week. We have a donate page on the web site. We take all forms of money...cash, check, credit cards. Even if it is only $5, every little bit counts. Maybe you could pass a jar around at the office, or maybe you could tell your friends to donate $5 to some children whos families could really use it??? We are a non profit organization so all donations are tax deductable! I would be more than happy to send receipts to those who donate. Tomorrow I will be posting our bands as well, on the web site. They are white and embossed with hot pink writing, Gifts of Gabi's Grace. This is a wonderful cause and people are always wondering how they could make a difference, so now is your chance.
So let the one week challenge begin...
Posted by Angel Gabi's Mommy at 11:00 PM
Friday, February 15, 2008
So much has been weighing on my mind for a while now. I try to stay focused on others and especially my sweet pea Kinsley! But the facts are I am so sad. I often still cry myself to sleep, I wonder how I can ever be as happy as I once was before. Jason wrote me the sweetest love note for valentines day and it made me realize how we can go on and be happy. Gabi is ALWAYS with us, in our hearts, on our minds, and most definitely with us in spirit. She gave us an appreciation for each other that most couples and families may never experience. Every time we hug, kiss, hold hands, or tell each other we love each other, she smiles! Every thought of affection for one another fulfills her purpose and why she was brought to us. And the more we spread her word the brighter her smile gets! We have passed that onto Gracie and Gracie will pass that message onto Kinsley and she will feel as if she did know her big sister. And then Kinsley will pass the message on probably to her little sister...remember I don't think Jason is capable of producing boys...haha sorry honey!
Anyways, I am not going to reveal my entire letter, but Jason gave me a new reason as to why I should be happy and rejoice in the times we had as opposed to focusing on her not being here now.
What an amazing gift of knowing that every time Jason and I show love and respect to each other our daughter is smiling down upon us. It makes us both want to spend every second of every day together so she will always be smiling and proud of her mommy and daddy.
Obviously I am so blessed with the family I had and have and will have. I cannot thank God enough for the joys he has brought to my life, but it still tears at my heart. I am going to start focusing more on making my precious Punky smile all the time. I want her to know I am not sad because of her I just miss her that's all. What kind of mother would I be if I did not miss my baby girl?
Gabi has introduced us to a world we knew existed, but never got involved with. I have a new mission in life and that is to spread the word of my daugther. And that is why we started Gifts of Gabi's Grace. I feel in my heart that someday it will be everything I have dreams of it being. Jason and I have a lot of work ahead of us, but we are 2 very determined individuals and together I know we can make it happen.
Many of you have been following along with Bella and Ava...
Bella, she is scheduled for open heart surgery on Monday morning. Please keep her in your prayers even though this is routine for her defect it is still a major surgery. She is doing well right now, but she is still fragile! Please pray for her parents strength. They are very good friends of ours and to know that they are hurting for their baby makes us hurt too!
Ava, she is still on the EMCO machine. They tried to wean her off, but her heart is still too stunned from the surgery to be able to operate on its own. They will try again on Monday to take her off. So please say extra prayers for her. She is still fighting and giving it her all. We just pray that the Lord will protect her and ease her of any pain. As for her parents, they are very special to us too! They are holding onto every ounce of hope and with good reason, the doctors still believe it is a fight worth fighting.
Be sure to visit their blogs for further updates. And please if you haven't left them a comment PLEASE do. I remember how much it helped keep our spirits up even when we were at our worst. If you are not a google member all you have to do is leave the comment and instead of signing in click on anonymous. Just be sure you put your name and where you are from in your comment...THANKS!!!
Posted by Angel Gabi's Mommy at 3:36 PM
Thursday, February 14, 2008
Wednesday, February 13, 2008
Amazing how little ones know so much at such a young age. We could all learn from Logan!
Posted by Angel Gabi's Mommy at 12:46 PM
This morning when I woke up I got onto the computer to do my ritual checking of the blogs. Well I was absolutely devastated, Bella is back in the hospital and will be having another open heart surgery next week. The surgery is something that Matt and Megan knew this would happen eventually, but not so soon or so unexpectedly. Megan had noticed that Bella seemed congested and not like normal congestion. They were suppose to have gone to CMH on Monday for a regular clinical appointment, but due to an ice storm, they did not make it in. Megan had called CMH yesterday and explained Bella's condition. She has also been sweating and showing some signs of heart failure. Megan is very good at recognizing when something is not right with Bella. CMH said come right in and bring a bag in case they have to admit her. Sur enough Megan's intuition was right. Bella needs to have open heart ASAP. Her surgeon is out of town, so they will wait till Monday or Tuesday when he came perform her surgery. She has an anurysm on her heart. Did you even know that was possible we didn't!?! It looks to be right at the conjunction of the piece they put in during her truncus repair. It is known as the homograft. For more details and continuous updates be sure to visit their blog...click on the link below
Posted by Angel Gabi's Mommy at 11:45 AM
Tuesday, February 12, 2008
Posted by Angel Gabi's Mommy at 5:03 PM
Monday, February 11, 2008
Baby Ava really needs our prayers! She has made it out of surgery, but she is now on ECMO...which is life support. I do not know more of her condition than that. All I know is that when Gabi came out of surgery and we had the ECMO conversation it was VERY serious. I am assuming that due to the nature of the surgery and how frail she is at only 1 week old, that is why she needs the extra support.
ECMO has about a 50% chance of living without having to be on it for the rest of your life. Ava's big brother Kaden was on ECMO in his early months and he survived without having to stay on it, so anything is possible. We just really need to pray! Please leave Nate and Amy a comment and let them know your thoughts and prayers are with them. It helps to feel the support around you!
Posted by Angel Gabi's Mommy at 5:05 PM
Sunday, February 10, 2008
Posted by Angel Gabi's Mommy at 8:42 PM
Saturday, February 9, 2008
I cannot believe I have not put an update on Kinsley. I went to the doctor on Tuesday. She is doing very well. In fact when the doc was listening her heartbeat, everytime she put the monitor on my tummy Kinsley kicked really hard. It was really funny! Next month I have the pleasure of taking the glucose test. I have to drink that nasty sugar drink in like 20 minutes and then wait and hour and have blood drawn. Oh the joys of pregnancy...don't get me wrong she is definitely worth all of my aches and pains!
Posted by Angel Gabi's Mommy at 1:47 PM
Wednesday, February 6, 2008
Baby Ava is doing well (knock on wood)! Amy just updated their blog, surgery is scheduled for first thing Monday morning the 11th. So this weekend for those of you who attend church or just on your own time, please add Ava to your prayer lists. She has a long road ahead of her, but with God anything is possible!
Be sure to keep checking on her and I will update too as we get word from Amy and family!
Posted by Angel Gabi's Mommy at 4:14 PM
Monday, February 4, 2008
We have a very special request for all of our viewers! Once again we need you prayers. I have mentioned our friend Kaden, who is 3 years old and is a miracle child. Well his little sister, Ava Rae, was born on Friday and she is in need of a miracle as well. She is stable now, but she is about to face heart surgery and we all know the seriousness of that. We are waiting to hear from Amy, mommy to both. She has been updating as frequently as she can. Right now Ava is in the NICU at CMH. To learn about their entire story please visit their blog...leave Amy and their family a comment, let them know your thoughts and prayers are with them through such challenging times. Support is such an important factor to keeping your sanity in situations like this. I know that the comments we received helped us get through many many tough times...they still do!
Posted by Angel Gabi's Mommy at 10:36 PM