7 weeks later and nothing...

So here we are waiting, and waiting, and waiting...ok deep breath!!! I have not been given any indication, but I just have this gut feeling that we will not be doing the trach tomorrow. She has retained even more fluids and her pee is not so good. Her kidney function numbers have been increasing, that is not good. They put her back on a lasiks drip again today, but we haven't seen a whole lot of results. But they say we may not see the results we'd like if those numbers keep going up.

I know, I know stay positive, keep hoping for the best, well I am tired and I feel like we just keep getting further behind in recovery. Everyday I wake up I see my angel still fighting and I thank God, every night I go to bed and give her smoochies still fighting...I thank God. I have so much to be thankful for, I still would not change anything about my precious little girl. But dear God please put your healing hands upon her and give her the strength she needs to recovery.

I know the trach will not fix things, but it gives me some sort of hope that she will be more comfortable. I believe if she is more comfortable she will be able to relax a bit more, which in turn will make things more tolerable for her. Then she can regain some strength and be my happy little baby girl.

Sweet Dreams to all!!!