Monday, August 13, 2007

Gracie, let's dance!!!

I have a special request for big sis, we need to do the pee pee dance! I have done it a couple of times, but it is a fact it works better when sissy does it. Gabi is peeing enough to still be in the safe zone, but we could definitely use more. The kidneys are doing their job, but are very very weak. She had to have the catheter put back in, that alone causes a risk for infection. And the last thing we need is an infection, there is a chance if she gets something she may not be able to continue the fight.

She is back on the milrinone, which helps her profusion. We did take a few steps back, but Dr. Tieves is on this week and Gabi does really well with her. So I told Dr. Tieves the pressure is on:)
The ENT doctor came today and we talked about the trach. He said if all goes as planned we will do the tracheostomy on Wednesday. So please pray for her strength to get us through the next couple of days!

Isabella is having a better day. She is back on quite a bit of medication, but she is able to sleep comfortably.

So thank you so much for the continual prayers, both of our families greatly appreciate it! I do believe with all my heart in the power of prayer, but I have to admit I am questioning a lot of things lately. I just want nothing more than to progress in the right direction. Gabi is fighting so hard and it breaks my heart that she is still in so much pain. She is an amazing little angel and I know she can and will pull through, but I just wish I could see a sign that we are moving in the right direction, ya know. I am at a breaking point, of course, I will be by her side and continue to fight with her, but it is so so hard, when you see nothing.

Hugs to all from Gabi...


Shannon said...

Oh I can so do the pee pee dance right now since I got to go! LOL!

I'll keep you all in my prayers! I have been doing a lot of praying already!

Anonymous said...

Micah-Tell the Gabster if she goes pee pee then I will bring her another trendy balloon next time I am in town! That oughta do the trick for sure. You guys are in my prayers, stay strong....

Xi love to ya,
Conn Dogg

kaden's mommy said...

Gracie you must have the magic touch, must be a sister thing!!! We hope everything goes well and that they are able to do the trach on might be a relief to get it over with for all of you. We will continue to pray for strenght for all three of you. I am happy to hear that Isabella is doing better. Let her family know that the invite is still open if they would like to talk (same goes for you). Hang in there, it will all get better. It is very frustrating to watch your little one go through so much and fight so hard just to end needing to take a few steps back. The day will come however when she continues to take steps forward without looking back...and then you'll be chasing after her!!!! Stay strong and sweet dreams Gabi girl. "Kaden's mommy"

P.S Jason, I hope your wrong about the truck thing. We have it on the lowest setting and it still freaks me out when he is going up or down a hill. We did let him ride it all the way to grandpa and grandmas house today (about 8 blocks away). Lucky me, I was bent over steering it the whole time (he needs to figure that part out quick!!)!!!

Anonymous said...

G'Morning love. I know Gabi is little but she can sense when your about to break.. SO BE STRONG! I know it's hard but God is watching over you. I am sorry your kidneys are weak Gabi, hopefully Gracie dances like none other..ha ha

I will be praying for the trach and the kidneys and Gabi fighting all of this yuckie stuff out of her body! God Bless lil Gabi and your family Micah.. I love you guys very much..take care
..still in my prayers Isabella's family and the rest of the lil ones who need a prayer.. GOD BLESS

Mom to Rhett said...

Doing the pee pee dance here for little Gabi! Is there anything I can do for you Micah? I know I am far away, but if you need to talk, let me know. Hugs to you and I think of you often.

Tell Gabi to get better so that when we come to Kansas Rhett can kiss both of his hottie girlys!!!

He gives great sloppy kisses!
Hugs, Pam and Rhett

Anonymous said...