ON THE SCHEDULE...

Well, so far it has been a good day! Nurse Lynee delivered the best news we've had all week, Gabi's trach has arrived! The ENT team came in around 8:15 this morning and they had a cancellation for this morning and are able to get Gabi on the schedule. So if all goes as planned she wil be in the OR before lunch. PRAY PRAY PRAY that this is exactly what happens and that the ENT team has success with no complications!

We will continue to update, but we gotta go shower before it's too late..we stayed with sweet pea last night...so stay close by and we will be back after a while!

It is 5 till 1pm and we are STILL WAITING, but we are still on the list!!!

4:15 PM - On the way to surgery.

They came in and talked to us about what was getting ready to happen and told us that they felt like everything should go fine. They did say obviously that Gabi is at an increased risk since she is so swollen and has been in the ICU for so long. Surgery is expected to last for about an hour. We just had a visit from the PACC Team, which is just a team that becomes a voice for parents. They take the frustrations of the parents to the doctors to make sure they understand us. Then they break down the twelve dollar words that the doctors use. They help you do long term planning for best case scenarios and help you think about planning for worst case scenarios. It was a quick meeting and said they would check in with us again on Monday. We still don't have any updates from the surgeons now at 4:55 pm. We will post another update once we do.

OPERATION SUCCESS!!!

The surgeons came out and gave us great news...things went very well. We just have to be very careful due to the risk of infection...nothing we haven't already heard.
Daddy and I just went back and gave Miss Gabbers smoochies on her lips, both of them...top and bottom. WOW, I missed those lips. She is still under a bit of sedations, but she seems to be coming out of it. Another thing, her tongue is back in action!!! The thrusting and the sucking...my how much we missed that too!!! Hopefully the swelling goes down soon and she can get her thumb up to her mouth and feel a heck of a lot better...something she misses I'm sure!
Thank you everyone for all the many many thoughts and prayers, she couldn't have done so well without them!

Love to all...

***keep doin the pee pee dance, we still need to push off a ton of fluids!!!